Non-profit support and advocacy group information on resources and education for families and individuals.

Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs. Formerly Spina Bifida and Hydrocephalus Association of Ontario.

World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.

NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder. US based.

Information, current news, research grants and discussion forum. National organization.