Curlie

Cystic Fibrosis

Cystic Fibrosis is an inherited disease of the exocrine glands, affecting the pancreas, respiratory system, and sweat glands. Usually beginning in infancy, it is characterized by chronic respiratory infections, pancreatic insufficiency, and susceptibility to heat prostration.

Cirrhosis of the liver, occurring in childhood, is common and may produce portal hypertension, splenomegaly, and hypersplenism.

Information found here includes research and testing; organizations involved in support, information or research; support groups; fundraising foundations and events; conferences, camps, and centers.

Sites submitted to this category must provide educational information on Cystic Fibrosis for patients, their families and caregivers.

Technical articles for patients should be submitted to /Research.

Websites designed for the education and training of medical professionals and providers should be submitted to the appropriate category in Health/Medicine/.

English-only sites. Information in other languages should be suggested to the appropriate category in World/.

Centers

Universities, hospitals and clinics that specialize in Cystic Fibrosis care.

Conferences

Annual and semi-annual conferences and meetings to discuss Cystic Fibrosis.

Fundraising

Sites where the main purpose is to promote a fund-raising event.

News and Media

News releases on recent developments and treatments.

Organizations

Groups that provide information on Cystic Fibrosis (CF) or work together on research.

This category contains sites for organizations, associations, and societies which provide support and information or are involved in Cystic Fibrosis research projects.

Sites for foundations which provide funding for CF causes should be suggested to the /Fundraising subcategory.

English-only sites. Information in other languages should be suggested to the appropriate category in World/.

Personal Pages

Site where the major intent is to memorialize someone who had Cystic Fibrosis.

Research

Clinical articles and research information related to Cystic Fibrosis, including causes, risk factors, complications, transmission, and treatment in children and adults.

As always, information contained in these articles is not intended to provide medical advice or replace personal consultation with a physician.

All sites or pages submitted to this category may be more technical in nature, but must contain information of use to patients, their families, and caregivers.

Websites designed for the education and training of medical professionals and providers should be submitted to the appropriate category in Health/Medicine/.

English-only sites. Information in other languages should be suggested to the appropriate category in

Support Groups

Sites in this category serve the support needs of people with Cystic Fibrosis, their families and caregivers.

These groups, communities, or meeting places provide an opportunity for people with a common experience (such as a condition or disease, or a care-giving role) to share their concerns, and to seek and offer information and advice.

Read each site's PRIVACY POLICY carefully, before providing personal information.

These sites are for educational and support purposes only. Please consult your doctor or other health care provider before making any lifestyle changes that may adversely affect your condition.

Sites listed here will represent support networks with a physical address and/or a web presence. Those with a physical address may also be submitted to the relevant Regional/. subcategory.

English language sites only. Please submit other language sites to the appropriate category in World.

Testing

Information related to testing (diagnostic, gentic and others) for Cystic Fibrosis.

For sites that primarily discuss sweat testing, nasal potential difference and any new method that may be developed. Not for blood tests, CVS, or amnio which would more appropriately go under the linked category of Genetic_Testing.