Marfan Syndrome is an inherited disorder of connective tissue which affects many organ systems including the skeleton, lungs, eyes, heart and blood vessels.
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Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
A global information center providing links to Organizations around the world.
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
A Question-Answer format page of information.
Article from eMedicine.
A diary of the disease events in the life of someone with this condition. Includes a list of links.
A guide to this connective tissue disease.
Irish charity with information on fund raising activities and the condition.
Major resources listed as well as genetic information.
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
Providing accurate and timely information about the disorder to patients, family members and physicians.
Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
From the National Institutes of Health.
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better.
(November 20, 2013)
A Question-Answer format page of information.
Major resources listed as well as genetic information.
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
Article from eMedicine.
Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
A diary of the disease events in the life of someone with this condition. Includes a list of links.
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
A guide to this connective tissue disease.
From the National Institutes of Health.
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
A global information center providing links to Organizations around the world.
Irish charity with information on fund raising activities and the condition.
Providing accurate and timely information about the disorder to patients, family members and physicians.
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better.
(November 20, 2013)
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- Recently edited by shedragon
- Recently edited by shedragon