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Formed in honor of infant son, Hunter, who was diagnosed with Krabbe disease (Globoid-Cell Leukodystrophy). Supports research on this and other leukodystrophies. Includes disease information, family registry, and other resources.
Formed in honor of infant son, Hunter, who was diagnosed with Krabbe disease (Globoid-Cell Leukodystrophy). Supports research on this and other leukodystrophies. Includes disease information, family registry, and other resources.
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Last update:
March 20, 2018 at 6:35:06 UTC
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Regional: Europe: United Kingdom: England: London: Greenwich
- Recently edited by merlin1
- Recently edited by merlin1