Spinal muscular atrophy is a term for a group of inherited neuromuscular diseases. All forms of the disease affect specialized nerve cells called motor neurons, which control the movement of voluntary muscles. SMA causes lower motor neurons in the base of the brain and the spinal cord to disintegrate, preventing them from delivering electrical and chemical signals that muscles depend on for normal function.
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Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
Provides information on this debilitating genetic condition. Includes a short video and details of symptoms, causes, diagnosis, treatment and prevention.
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
Information on SMA, and the latest updates in research, treatment and funding.
The BBC News reports on a company that makes child wheelchairs, and discusses the effect on children with spinal muscular atrophy.
(June 27, 2014)
Provides information on this debilitating genetic condition. Includes a short video and details of symptoms, causes, diagnosis, treatment and prevention.
Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
Information on SMA, and the latest updates in research, treatment and funding.
Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
The BBC News reports on a company that makes child wheelchairs, and discusses the effect on children with spinal muscular atrophy.
(June 27, 2014)
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February 3, 2022 at 6:15:11 UTC
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- Recently edited by shedragon
- Recently edited by shedragon