Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.

A list of synonyms, a summary and major features.

Provides information on this rare genetic condition. Includes details of symptoms, causes, diagnosis and treatment.

Offers alternative names, a general discussion and further resources.

An incurable genetic condition that causes tumors to grow in various places in the body.

US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.