Epidermolysis Bullosa is a genetic disorder characterized by a fragility of the epidermis or skin, causing blistering, scarring, and sometimes death.
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Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
Offers information, news, newsletters, support, and resources.
Features organization background, information about the disorder, fundraising and research details, and news.
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction.
(November 29, 2013)
The BBC reports on the death of two brothers with ‘butterfly skin’.
(March 18, 2013)
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
Features organization background, information about the disorder, fundraising and research details, and news.
Offers information, news, newsletters, support, and resources.
The BBC reports on Sohana Collins, who has never known a day without pain. She has a rare genetic disorder that means her skin, internal and external, blisters and tears at the slightest friction.
(November 29, 2013)
The BBC reports on the death of two brothers with ‘butterfly skin’.
(March 18, 2013)
