Barth Syndrome is a rare but serious genetic disorder that affects males.
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Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
Information on this rare, metabolic and neuromuscular genetic disorder provided by the National Organization for Rare Disorders.
Information on this rare, metabolic and neuromuscular genetic disorder provided by the National Organization for Rare Disorders.
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
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